Title

Nurses at the helm of transforming lives in the shadows of Hemophilia

Authors

Gnana Sarjana Ramakrishnan¹, Shankar Shanmugam Ragendran²*, Gomathy Priya Venkatachalam¹, Jebamalar Rajan¹ & Gnana Malar Periyakaruppan¹, Herolin Vimala Muthupillai¹ & Bibilin Wilson³

Affiliation

¹Department of Community Health Nursing, College of Nursing, Madras Medical College, The Tamil Nadu Dr. MGR Medical University, Chennai, Tamil Nadu, India; ²Department of Child Health Nursing, College of Nursing, Madras Medical College, The Tamil Nadu Dr. MGR Medical University, Chennai, Tamil Nadu, India, ³Department of Medical Surgical Nursing, College of Nursing, Madras Medical College, The Tamil Nadu Dr. MGR Medical University, Chennai, Tamil Nadu, India; *Corresponding author

Email

Gnana Sarjana Ramakrishnan - E-mail: gnanasarjana@gmail.com
Shankar Shanmugam Ragendran - E-mail: shankarshaki@yahoo.com
Gomathy Priya Venkatachalam - E-mail: kgksavan@gmail.com
Jebamalar Rajan - E-mail: jebamalar2013@gmail.com
Gnana Malar Periyakaruppan - E-mail: malar.p1989@gmail.com
Herolin Vimala Muthupillai - E-mail: herolinvimala@gmail.com
Bibilin Wilson: bibilinw9902@gmail.com

Article Type

Research Article

Date

Received August 1, 2025; Revised August 31, 2025; Accepted August 31, 2025, Published August 31, 2025

Abstract

The multifaceted challenges faced by hemophilia survivors, focusing on psychological distress, social isolation and quality of life (QoL). The intervention, a nurse-led program, significantly improved QoL by addressing emergency management, physical activity and dietary guidance. The quantitative results showed a notable reduction in QoL scores for the intervention group. Sociodemographic factors like age, disease severity and place of residence influenced outcomes. Thus, we show the importance of comprehensive, patient-centered care to improve both clinical and psychosocial outcomes for hemophilia survivors.

Keywords

Hemophilia, quality of life, nurse-led intervention, chronic illness, mixed-methods study

Citation

Ramakrishnan et al. Bioinformation 21(8): 2639-2642 (2025)

Edited by

Ritik Kashwani

ISSN

0973-2063

Publisher

Biomedical Informatics

License

This is an Open Access article which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. This is distributed under the terms of the Creative Commons Attribution License.